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Individual and System Advocacy

Be respectful of disability – wear your mask and don’t look down on those who do.

I recently attended a national conference of professionals in the field of Independent Living. I showed up in my mask and wore it most of the time, but I still felt the unspoken peer pressure of, hey, most are NOT

Paula McElwee May 25, 2022May 25, 2022 History and Philosophy of IL, Individual and System Advocacy, Technical Assistance No Comments Read more

System Advocacy or System Change?

Advocacy is defined in our regulations, in 45 CFR 1329.4: Advocacy means pleading an individual’s cause or speaking or writing in support of an individual. To the extent permitted by State law or the rules of the agency before which

Paula McElwee February 23, 2022February 23, 2022 Individual and System Advocacy No Comments Read more

Staff training clips from archives

You might find it helpful to utilize some of the on-line resources for your staff meetings and staff training. Some center approach training by doing a short segment during each staff meeting. I suggest up to 30 minutes each. Here

Paula McElwee May 1, 2019September 9, 2019 Consumer Goals, Core Services, History and Philosophy of IL, Individual and System Advocacy, Staff, Technical Assistance 1 Comment Read more

Getting out the vote

You already know that, as a recipient of federal funds, you can lobby, but can’t use those federal dollars to lobby. You know that your CIL or SILC can’t support or oppose any candidate for office because of  your tax-free

Paula McElwee November 2, 2018November 2, 2018 Finances, Individual and System Advocacy No Comments Read more

11 Warning Signs of Gaslighting

Recent events have raised a national conversation about “gaslighting”, and I don’t know about you, but much of what is being said resonated with me, not just as a woman, but as a woman with a disability. I found this

Paula McElwee October 19, 2018October 19, 2018 Consumer Control, Ethics, Individual and System Advocacy No Comments Read more

Personal reflection on chronic pain

Usually this blog focuses on regulations that impact Centers and Councils. I am going to have a completely different conversation today. If you aren’t comfortable with where this goes, that is okay. I will resume the more typical posts next

Paula McElwee March 2, 2018December 17, 2019 Individual and System Advocacy, Peer Support No Comments Read more

Allowable costs for federal grants — about lobbying

Over the next few weeks we are going to address the costs that are NOT allowed with federal money, or that are allowed in some cases and not others. The first topic we should discuss is lobbying.  First, a CIL

Paula McElwee December 15, 2017December 8, 2017 Allowable Costs, Finances, Individual and System Advocacy, SILC No Comments Read more

Advocacy Skill Building Toolkit – Teaching Advocacy to Youth

You may have heard that, when Ed Roberts (the father of Independent Living) was asked to name the core services for Centers, he replied, “Advocacy, Advocacy, Advocacy”. While we know there are other core services, advocacy is the foundation. At

Paula McElwee August 4, 2017July 13, 2017 Individual and System Advocacy No Comments Read more

Systems change advocacy – six effective strategies

I was readying an article in Non-Profit Quarterly recently, an article about how to change an established system.  I was reminded of a few important principles around system change. We are not the only group in the world working for

Paula McElwee May 19, 2017May 11, 2017 Access, Individual and System Advocacy No Comments Read more

Are you ready for that emergency?

It’s that time of year again. There are floods, landslide, road washouts and more in California. Weather events happen all across the country. Blizzards. Earthquakes. Tornadoes. Ice storms. Recent fires in the Tennessee towns of Gatlinburg and Pigeon Forge burned

Paula McElwee January 13, 2017January 26, 2017 Consumer Goals, Emergency Preparedness, Individual and System Advocacy No Comments Read more
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Recent Posts

  • Independent Contractor V. Employee Guidance yet Again
  • Passing along — fellowship for self-advocacy for individuals
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Our funding

This project is supported by grant numbers 90ILTA0001 and 90ISTA0001 from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.

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