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Consumer Control

How can your board find a new Executive Director with a disability?

The rules for consumer control indicate that 51% of your managers must have a disability. In smaller centers where there is only one manager — the Executive Director — the board must hire a person with a disability. Even if

Paula McElwee August 4, 2021July 7, 2021 Consumer Control, History and Philosophy of IL, Regulations, Technical Assistance No Comments Read more

Answering the questions of the new CIL Executive Director

Do you remember your first day on the job? That flutter of excitement and apprehension? The navigation of new terms and new requirements that no one warned you about? We offer technical assistance to a new Executive Director in a

Paula McElwee July 14, 2021June 28, 2021 ACL Guidance, Conflict of Interest, Consumer Control, Core Services, Finances, Regulations, Technical Assistance No Comments Read more

Be particular about Consumer Control

Consumer control is the foundation of Independent Living, and permeates the board, staff and management of Centers as well as the Statewide Independent Living Council (SILC). The requirements are clear: More than 50% (51% or more) of the board members

Paula McElwee October 21, 2020October 20, 2020 Board, Consumer Control, Regulations, SILC, Staff, Technical Assistance 3 Comments Read more

Board Recruitment tips for CILs

Does your board of directors have the expertise needed to oversee your organization? Are all your board positions full? Are you planning for the day when members rotate off your board? You should always be on the lookout for good

Paula McElwee February 12, 2020February 12, 2020 Board, Conflict of Interest, Consumer Control, Diversity and Intersectionality No Comments Read more

Disability Determination and Consumer Control

Consumer control is an important foundational philosophy of Independent Living. Centers are required to have more than 50% board members who are people with significant disabilities, and more than 50% staff, and managers, who have disabilities. SILCs must have more

Paula McElwee May 17, 2019May 17, 2019 Consumer Control 2 Comments Read more

How do I teach consumer control to staff?

Question: I’m particularly focused on boundaries and personal choice as reminder to existing peers in their work with consumers. As happens with many of us in any human service in our desire to “help,” I’ve had a couple situations in

Paula McElwee April 24, 2019April 24, 2019 Consumer Control, Consumer Goals, History and Philosophy of IL No Comments Read more

Privacy and Confidentiality

Privacy and Confidentiality

What are the privacy rights of the people you serve? Can they expect staff to keep visits and personal information private? Do you need consumers to sign a release of information? If yes, when? Some centers seem like tight-knit communities,

Paula McElwee February 1, 2019February 1, 2019 Consumer Control, Consumer Service Record, Privacy, Volunteers No Comments Read more

How does a center determine eligibility?

Question: At a recent staff meeting, staff were asking for clarification about our Eligibility Statement on our consumer intake form and what exactly they were certifying by signing. I am embarrassed to say that I did not have a good

Paula McElwee January 18, 2019January 18, 2019 Consumer Control, Regulations No Comments Read more

Staff that do too much?

Staff that do too much?

Question:  I’m looking at the ILRU website hoping to find an existing training on Boundaries … topics like doing things for consumers rather than empowering them, stepping on consumers’ toes, respecting consumer privacy, etc. I’ve been having some difficulty with

Paula McElwee December 14, 2018December 14, 2018 Consumer Control, Equality, Ethics, Privacy, Staff No Comments Read more

11 Warning Signs of Gaslighting

Recent events have raised a national conversation about “gaslighting”, and I don’t know about you, but much of what is being said resonated with me, not just as a woman, but as a woman with a disability. I found this

Paula McElwee October 19, 2018October 19, 2018 Consumer Control, Ethics, Individual and System Advocacy No Comments Read more
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Recent Posts

  • Independent Contractor V. Employee Guidance yet Again
  • Passing along — fellowship for self-advocacy for individuals
  • Recent tax legislation by John Heveron
  • Disclosure of disability for board and staff…
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Recent Comments

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Our funding

This project is supported by grant numbers 90ILTA0001 and 90ISTA0001 from the U.S. Administration for Community Living, Department of Health and Human Services, Washington, D.C. 20201. Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official Administration for Community Living policy.

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